The Teenager with Butterfly Skin (Epidermolysis Bullosa)

published 1 week ago by Dr. Frederick B. Covington

Here is a teenager whose skin is so fragile it bleeds and blisters as she sleeps. Sohana Collins’ morning routine takes longer than most: on schooldays the 16-year-old wakes up between 6-7am while her mother, Sharmila, carefully unwraps Sohana’s bandaged arms, then uses surgical needles to prick her daughter’s painful blisters before cleansing and moisturising Sohana’s paper-thin skin. Sohana suffers from Epidermolysis Bullosa, a rare genetic condition commonly referred to as the butterfly syndrome because skin is as delicate as a butterfly’s wings.

more episodes from Occupational Therapy Insights